Tuesday, March 24, 2009

History is Being Made.....

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Never regret a ride on a star,
A dream, or a hope that was aimed too far,
That wonderful castle you built in the air,
Though it tumbled and left but a memory there.
For dreams that go drifting
And hopes that are high...
A ride on a star through a silvery sky...
These are the wonderful, magical things,
These are the glorious, gossamer wings
that carry us up where the angels play,
And Heaven is ours...though it is only a day;
But one day in Heaven has infinite worth
In brightening the practical pathways of earth. Helen L. Marshall (No Regrets)

This past weekend was something to behold. I celebrated my 62 birthday among many of my closest friends with Parkinson's Disease. Some I had only just met and some I had only met on the Internet. Some I cannot recall their names but their faces and laughter I will remember always. One of the most amazing things was the warmth with which we were greeted on Capitol Hill and the genuine compassion and concern that was shown to us one and all. I visited my representatives and congressmen from Illinois....thanking them for their support in the past and asking for continued support in the upcoming Congress....Caucus signatures were ask for and gotten and our view points were listened to with heart. Thank you so much for letting me be a part of history as a cure for Parkinson's comes closer and closer in my life time.

Thursday, March 12, 2009


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Little did I think a year ago all of this could possibly be going on in the world at one time. I can only say God is definitely ready for a change. The economy crashing before our eyes...unemployment everywhere. I had to go to St. Louis, Missouri last Friday and drove down the major factory grouping on Limburgh Blvd. This is where plants like Boeing and such are located. Plant after plant with half empty lots are closed down all together....car dealerships just three months ago full now empty or closed. It was to say the least sobering. Too many people for me to fathom suffering in one way or another. So much sadness everywhere.

Out of all this this week has come huge shooting stars...The signing of the stem cell research bill, Monday has just took off. I had an email from a new friend who is leaving for possibly on of the fist stem cell transplants from a soon to be arriving grandchild.....Now just how awesome is that. The first of this week this lady was at her wits end and close to suicide. 54 years old and on a huge amount of cross matched meds....now look !!!!! On her way to a possible cure. I am so thrilled to be a part of this history that will change man kind.

Tomorrow I will leave for Washington, D.C. to lobby Congress but this is my plan while I am traveling. Get a form letter composed to be sent out to all the institutions testing cell transplant, offering my family history and the fact that we have four generations living and all have some neurological disorder plus one generation passed that exhibited such disorders. I can only say now, the phones are hopping right now with people calling for research entry.....get in there let them know where you are....fax , send a letter call......it's important....love pokie

Today With PokieToo and Parkinson's and Acute RA Disease