Scared Me To Death....

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I have so much I want to say and no way can I get it all out. In the past two months I have been lead to believe I might have had a heart attack and another was just around the corner, I was a diabetic, and probably had cervical cancer. All of this false hood resulted in multiple pre-op tests and one gynecologist said he would not touch me with a ten foot pole.....and I should only have surgery in a center of excellence with a trauma room. Now two months later and four specialists later and four two hour all day trips to Springfield, Illinois and I am now told my heart is fine with blood pressure of 120/70. Yes I am overweight and 63{old} but so far no cancer and for sure no D/C which they were" preoping "me for in the first place.

Could a couple of small town doctors saw a good set of insurances(medicare and Cigna) and decided to put the worst on the results and see if anyone bought it? Check these out
one chest Xray
one lateral xray
one MRI lower lumbar
blood full blood work
one sonogram external
one sonogram internal
one set of bending Xrays
3 pelvic exams
and these specialists, spinal surgeon, 3 gynecologists, heart surgeon, general practitioner and a movement disorder specialist.

I went to the last gynecologist Monday with two sacks of med one a gallon ziploc with meds I use to take and a pint ziploc with what I take now after two months of weening myself of of all my PD meds.....He actually is the second doctor to applaud me for doing this ...I WAS EXTREMELY OVER MEDICATED and exhausted.....

This has been a wild two months and though it is not over yet...it almost is and I shudder to think I could have had a D/C for nothing......I would truthfully say the system let me down....love pokie too

Hanging Out With the Right Crowd

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This is Abe and I from the recent Neurological Disorders Conference in Vandalia, Illinois.....

Always Trying to Catch Up

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I've been away for awhile but never a day went by without thoughts of something I needed to write. I keep a notebook by my bed and often just jot down a thought or line to a poem and roll over and go back to sleep. By morning the thought would have disappeared into the sunrise and even with that note I sometimes have lost the thought all together. My Parkinson's disease has decided to make it's self known to me and the world and for the last two weeks I have traveled from doctor to doctor trying to get half way fixed or medicated. We will see this week what will happen and where this is leading. But never fear there is no end to my fighting PD with all I have and none of this would be possible without my friends from Patientslikeme.com.....my home away from home.

Now let me tell you what our beautiful guilt is doing.....she is resting while everyone who did a square is sending in a story about their square. I have received many stories and they will amaze you someday. The love sewn into each square just gives it life. I received pictures yesterday from the 2009 Parkinson's Unity Walk of our team Team PLM which netted $13,694.85 in donations this year....every penny of which goes to research. She has also been entered in this years Parkinson's Disease Foundation Creativity Contest. When she starts traveling again, she will really travel for the world to see just how productive PD patients really are. Yes she is indeed Beautiful. love pokie

YouTube - PatientsLikeMePD's Channel

YouTube - PatientsLikeMePD's Channel

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Parkinson's is One Crazy Disease

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This Parkinson's Disease really keeps one on their toes if you have any hope of keeping up with it. Everyday is a whole new ball game but their are no time outs to regroup. Every inning is intense and suspense activated. If Joe Parker is the Pitcher, he's the best the coach can bring in. I pray for a slow ball and he pitches a curve. I pray just to hit the ball and maybe make it to first base. He pitches that curve, I strike and I'm out for that inning. Now if I am a good player, I square off my shoulders and walk proudly away and when my next time at bat comes up, I give him my evil face and hope it will scare him. I keep my Parkinson's eye on him and my good eye on God and swing with everything I have. I'm not quite a Albert P but somewhere in my brain I think I might be if given a chance and me and the ball connect. I cannot run but I head for first and they fumble the ball somewhere in left field. With my head down and one arm swinging, I am repeating, "I think I can. I thin k I can.".....Hell has no fury like a sixty two year old grandma on a mission and I make it. .......Huffing and puffing the whole way.

As the inning progresses, more of my teammates gain hits and move me around the bases and then up steps "Big Albert" to the plate. All eyes are on Albert and I can not think for the pounding in my ears. It's that old curve ball BUT Albert gones for it and connects and it's gone!.....Joe Parker watches as I stumble across home base with Albert in close pursuit yelling "Go Parkinson's....Go for the Cure" and we win in the ninth two to nothing......What a dream ....huh? love Pokie

Finally a Light

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Finally this week after three years, I think I have coordinated my health care in all phases. I have had to have so many specialists with all my malfunctions.....Neurologist, orthopedic surgeon, rheumatologist, and general practitioner. Often egos interfered with who would do what and then nothing would get done but this week after three years my neurologist took the big step and we are off in the right direction. I have always thought if all of my doctors would confer with each other I would come out better in the long run. I would get more testing and have a wider array of opinion as to the problem. On a three way connection this week they talked about my blood work and MRI's I had had and whether or not I had a major infection going on....My MRI's were showing spinal shirkage but my Neuro stepped in and said "NO Surgery" and got with my GP and ask to go ahead on a ultra sound to track the infection. Meanwhile my Rhuematologist was right in there tracking my blood test and monitoring Diabetic activity and Potassium levels....potassium too low and sugar too high.
Also I had my pharmacy try to charge me $444.00 for one prescription and had I paid it , it would have been gone....I refused and called my insurance and got it for $22.00....Also a $145.00 doctor bill was not billed through medicare first and denied.....Don't just step up and pay these bills because it will be your loss....and every penny is important right now.
Best of luck with your doctors and follow your heart as to what you think is right . Don't be afraid to change doctors if you don't get results.....I am very pleased with my team...love pokie

Getting Old and Laughing at Myself

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This getting old is a tricky thing. And when do you go through it? When your too old. Too old to finish a thought without getting side tracked. Too old to see the seriousness of something you think is funny. Too old to do what your kids tell you to do without a comment that only gets you in more trouble. I guess it's a blessing that God saves Old for last...so we can savor the moment and even though we may be the only one enjoying the humor of it...we chuckle to ourselves and walk away while someone, somewhere is shaking their heads in disbelief. Blundering through life is one thing and then you realize that education is drastically needed to complete the goal. With three years of college behind me in the Young phase of my life, I think I could really enjoy and learn something now. College was actually a social event in our town. It was something everyone did after high school but not much was learned....Now in he quiet of my Old phase, maybe things would sink in better...I can only hope I have enough active brain cells to understand. If I don't, I'll just have something else to laugh about.....lol love pokie