After all I've done for you?

How precious life is to me,yet I have no fear of dying. I hope all that know me realize my faith keeps me ever driven. God keeps me in perpetual motion. I am in constant search of something I have never seen...a new color, a new sound, a beautiful sunset or dawn. Parkinson's tries to slow me down and then I realize that I have no time for pain nor does anyone else have time to listen to me complain. My feet have never stopped in the last week and I LOVED IT. I covered miles all said I should not, overcame a new fear I have developed of driving in St.Louis by myself and most important I had conversations with people I should have talked to years ago. Surely in these conversations you take the possibility of hearing things you don't want to hear but when all is said, your life is richer by far. I would take this opportunity to thank Russ and Heidi for listening to me babble on. I have spent a week with two of my many VBF and feel the warm glow it has produced. Thank you Lord for holding my hand as I ventured on in discovering the art of being a better servant and also thank you for whispering in my ear once years ago, "After all I have done for you?" when I threatened to give up and go back to bed....love ya Pokie

WHAT A NIGHT

What A Night! My all time favorite Bob Seger is in St.Louis tonight. I saw him in April in Indianapolis. As I was watching on UTube, I got so wound up I got up out of my chair and started to dance.....really dance. That's a first in oh, so many years. This was not slow dancing. This was "get it done" fast. Ok, I knew some things were changing with me, but I have been sitting here waiting for direction and it was here all the time. Almost two years ago I almost gave up on helping anyone with this terrible disease of Parkinson's. No one knew how I felt....I kept it to myself and struck out on my own. That is not all true because I had someone very close to me pushing me on. I can still hear him tell me, "Parkinson's does not define you....where is the person I know and love?" I had no idea. I was so tired of being used for one thing or another and no one really listening to what I felt. I was more than that person who got up in the morning, took my many meds and laid back down waiting for the four hour rush so I could get done what needed done then back to the couch exhausted. I started, after both knees being replaced, with the fact that my right hip was gone. Oh but you know PD people don't mend well. By last November I was in a wheel chair. Hip surgery and lots of love and I could walk, with a walker or cane a half lap at the gym. Everyday I was encouraged,at least once, to go a little further. Yes,love spurred me on but more than that, I really needed his acceptance. I just wanted to be able to walk, standing up strait, next to him and see him smile. Now a year later,I am doing a mile and a half and have lost almost one hundred pounds. Then I blog and Theracycle contacts me that they had read my article and they had got some NIH funding....Great this is what I believe in....then silence. Then tonight OUT OF THE BLUE a email from Davis Phinney Foundation on their new funding for exercise trials on PD patients. I pray and read constantly for guidance but I guess I am so hard headed I didn't see what was going on right under my nose. I had been to The Davis Phinney Foundation Seminar in Colorado in 2008 or 09 and then got tied up in other places and eventually burnt out. No one was listening to the patient....and each of us was so different. Ah, but tonight a fire has been re-ignited and I CAN DANCE.....ONCE AGAIN......more to come for sure.....love Pokie ...............Oh, and P.S...Thank you, God....you were right as always.