Saturday, December 12, 2009

The Story of "Our Lady" The Parkinson's Quilt Project



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If I can do this so can you.  Good thought huh? I have never believed in the word can't and I am very much a dreamer. When my children were small and still to this day, I told them there was nothing they could not do and now I have once again enlarged my family and on patientslikeme.com I am telling each member on the Parkinson site they can become quilters , if they believe.  No matter where their disability lies in this disease, just as long as their choice in material and art supplies is permanent.  I want them to open up their hearts and show the world their feelings about Parkinson's Disease and in doing that prove to the world how productive a patient with this disease can be.  October of 2008 I ask them if they would like to make a quilt and over twenty made me squares which I had quilted into the large quilt you see above.  The square below it is my square. The quilt is she in gender and we refer to her as "Our Lady" When one of us is sick, she travels to encourage us on.  She is now in Texas with VigWig while he has DBS surgery. If we are talking to a group, or just need her hug," She" is there.  It may seem odd that such a diverse group can find beauty and help in such an odd way from the past.  Aquilt has always stood for warmth and comfort, security and best wishes.  These are everything a Parkinson's patient seeks out.  patientslikeme.com gave us the space and encouragement to carry on our quest. We spent hours transfering pictures of our project and when it came time for the 2009 Unity Walk we were ready to show the world who we were and where we came from.  It was a beautiful day for not only me as caretaker of "Her" but all who participated and all who saw her.
My square has a laminated penny stitched into the center of the tulips, for good luck., just as I try to do with each of my squares.  I am a three star member of PLM and have been on the site over three years.  PD's colrs is red and the tulip is our ensignia. God is always with us, hense the cross. I always hand stitch in order for my soul to be a part of the piece.  My grandmother use to say."every quilt needs a finger prick for a drop of blood to give it life". That's my name Pokie Too and has been from my first signing on in October three years ago.
Now I am asking even more people to join in and experience the joy of a project for not only the wellbeing of your heart but the wellbeing of many across the world. We at Parkinson's Disease Foundation are making 2 foot x 2 foot panels to be joined into quilts to be displayed at the Global Conference in Scotland in(once again) October.  October seems to be my lucky month!  Each panel will be registered and numbered and require a $25 fee fpr that registering.  There are scholarships to cover the fee if it is not available. They can be joined together to represent a site or company or made in honor of someone you know with the disease or has passed on. You may know a caregiver you want to recognize.  Just  remember you have to register your square before sending it in.All of the How to Do This are at http://support.pdf.org./quilt  Check it out be you male or female and see what you can do to bring awarness to this terrible disease.......love Pokie

Today With PokieToo and Parkinson's and Acute RA Disease