Thursday, May 6, 2010

Lyme Awareness Month

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Yes, right after National Parkinson's Awareness Month is National Lyme Awareness month and I have a very dear friend who fights this disease with all she has body and soul. We started our journey four years ago on Patientslikeme.com where we had both just stated posting on the Parkinson's forum. At that time it was a small very close knit group. Now we have grown to over 5,000 but those original members are still very close as Karen and I are. In that four years she has went from a diagnoses of PARKINSON'S to MSA to LYMES. actually her first lyme test came back negitive but she persisted and changed testing companies and doctors and got her final diagnoses and did not miss a beat in her determination to make America aware of the crisis that is upon us in this country. I live in a very rural setting where I have been all my life and honestly cannot tell you how many times me and my family have been bitten. Here it seems to be a right of passage into adulthood. Twice a year the ticks come...Spring and Fall. They get on all of us. We check heads, back of knees and waist bands daily of all kids and ourselves. All animals get meds and dipped or dusted(both great for humans, kidding) and you go on to the next season. WRONG!
People are now finding that they have been diagnosed with Parkinson's and actually had Lymes all along. The symptoms are the same the treatment is not. The treatment is high, continued doses of antibiotics....and believe me if you have let it go for a while it is a life threating, very hard disease to fight. The epidemic is so huge and the treatment so controversal that often patients are treated in secret and today I learned this disturbing fact which preempted me to write this article. If a group ever needed a safe environment to connect and discuss their problems and solutions on the internet, it is the Lymes Community and their forum is wanting to charge them $600.00 a year to participate. TOTALLY OUTRAGEOUS......
There is a film called "Under My Skin" get it and listen to every bit of it. Igenic is the testing physicality and the blog you need to be following is http://mobmsa.blogspot.com Metamorphis of a Butterfly.
The bottom line is don't let anyone tell you that there are no ticks in your area. They are everywhere...rural and cities.....inside and out..yards and woods. If you get a bite go to the doctor immediately and if the tick is removed take it along for testing. It's better to be safe than sorry and what they don't tell you is it is an extremely expensive disease to treat and can be fatal....love Pokie

2 comments:

9425louiem said...

TAHNKS FOR YOUR SHARING~~~VERY NICE.................................................

btrflynana... said...

Pokie
thank you my dear friend for your love, friendship and support!I so appreciate you looking out for all of us!I pray we both see PD and Lyme cured for all aflicted!
God bless ya kiddo! b'nana

Today With PokieToo and Parkinson's and Acute RA Disease