I never feel like I know where to start when I have been away for awhile. I will have this uneasy feeling for days and get real nervous and not know why. All this usually means I have something I need to say or write and I'm looking for a place to drop whatever......(Kind of like when a mother cat is looking for a place to have her babies.) Now as I look back on my life, I find I have had this uneasy feeling a lot. I have never really found my true place and just wandered around like a "true hippy" just trying to fit in and make a difference. Now at 64, I have more time to read and listen to just what My Lord is trying to tell me. Often when young and a mother (single or not...I have been both), you get so wrapped up in the chores you forget to listen. Just a few minutes sometime each day to say, " thanks" and ask, " what next?" I have learned since coming down with my continuing aliments that I have more time to listen if I can just stay awake to hear the conversation. As I have no doubt said before somewhere, this seems like the fourth quarter of the game and the couch turned to me and said, "Go on in, Charlene." Now I really do not know if he thought there just was no more hope so what the heck OR he felt I might be able to make a difference......time will only tell.
As my new adventures usually happen, I was feeling kind of sorry for myself today and decided to just lay on the couch and pretend I was watching television and the phone rang. No it wasn't someone who was trying to sell me something.......wait a moment it might of been? She could have been offering me a new look at life. I have been ask to talk to two different support groups in the next two months....... Me all by myself. I never would have dreamed I would be ask.....really.
The thing that makes this so crazy is that I am not only battling chronic illness, but weight loss and a new body to deal with. It really was much, much easier to hide in a fat body in a wheel chair and just get by. Don't get me wrong, I am not skinny by any means, but I have lost 70 and more pounds and it's scary. I have used my fat self to protect me from harm and hurt for years. I never really let anyone get through that last door to my heart.....because if they got it open I was open to everything And the little fat girl could go home after all these years.
Along with all the rest my mom slips steadily into her own world where everyone, including me are enemies.....Alzheimer's does that and that I won't dwell on. All I can mention is I am so happy God is on my side with this and continues to offer me new stimulation and solutions to some problems.
These are just a few of the things I have learned in the past month.......noodles are get, get in the water and use those arms. Walk everyday and go as far as you can and say a prayer at the end. Try alternative medicine and get organized. ORGANIZED, ORGANIZED OR YOU WILL JUST GO IN CIRCLES trying to figure out what next. Every minute should be like a dance AND keep your favorite things at arms reach for those long sleepless nights and days of self doubt......
Well enough of my preaching. I feel vented now that I have got on the soapbox after such a long time......Peace be with you all and PLEASE take a minute to listen. Love ya Pokie
Showing posts with label HealthDataRights.. Show all posts
Showing posts with label HealthDataRights.. Show all posts
Friday, July 8, 2011
Friday, July 30, 2010
Local Woman Joins in on Parkinson's Quilt Project
Look what showed up in my home town paper in the middle of nowhere today...the town was buzzing!
LOCAL WOMAN JOINS IN ON PARKINSON'S QUILT PROJECT
Vandalia resident Charlene Pryor recently used her talents to contribute to the Parkinson's Quilt Project of the Parkinson's Disease Foundation (PDF) seeking to raise awareness of Parkinson's Disease(PD) and the need for a cure.
Pryor, 63 was diagnosed with Parkinson's in 1995 and took up quilting as a hobby in 1980.
Among the many quilts she's created over the years, one of her favorites is a piece she made about her experiences living with Parkinson's.
So when she heard about the Parkinson's quilt Project, which will bring quilts together from all over the world, she was eager to get involved.
She not only sewed a panel for the quilt, she also serves on the project's advisory committee. In this capacity, she performs outreach to other people affected by Parkinson's, letting them know they too can play a part.
Pryor's own quilt panel, entitled "Thanks" is a tribute to the various Parkinson's organizations, including PDF, that provide important services and information for those with PD.
Her Panel, which she sewed in one week, features logos of each charity, which Pryor calls "lifelines" for those with Parkinson's
.
Pryor said of her efforts, "I am grateful that PDF was able to provide me with an opportunity and that they are bringing together quilters who have the same goal in mind: to let others know about Parkinson's.
"I also hope that my contribution to the quilt project lets others see that they too can help make a difference by becoming involved, whether by quilting or any other means."
Robin Elliott, executive director of the Parkinson Disease Foundation, the organization that is leading the quilt project, said,"The true power of the Parkinson's Quilt Project comes from the 600 individuals such as Pryor,who actually create the pieces that we assemble. When the quilt is displayed for the first time at the World Parkinson's Congress in Glasglow, Scotland in September, it will radiate her contributions and those of hundreds of others around the world who, like her, are touched by Parkinson's.
"It will also remind the world that we need increased awareness and funds to find a cure for Parkinson's. We applauded Ms. Pryor's efforts to help make all of this happen." Those interested in learning more or requesting an image of Ms. Pryor's panel can do so by calling PDF at (800) 457-6676, emailing info@pdf.org or visiting http://supportpdf.org/quilt.
About Parkinson's Disease
Parkinson's disease is a progressive neurological disorder that effects nearly1 million people in the US. Although promising research is being conducted, there is currently no cure for Parkinson's
About the Parkinson's Disease Foundation
The Parkinson's Disease Foundation(PDF) is a leading national presence in Parkinson's Disease research, education and public advocacy. It is working for the nearly 1 million people in the U.S. who live with Parkinson's by funding promising scientific research to find the causes of and a cure for Parkinson's while supporting people with Parkinson's and their families and caregivers through educational programs and support services.
LOCAL WOMAN JOINS IN ON PARKINSON'S QUILT PROJECT
Vandalia resident Charlene Pryor recently used her talents to contribute to the Parkinson's Quilt Project of the Parkinson's Disease Foundation (PDF) seeking to raise awareness of Parkinson's Disease(PD) and the need for a cure.
Pryor, 63 was diagnosed with Parkinson's in 1995 and took up quilting as a hobby in 1980.
Among the many quilts she's created over the years, one of her favorites is a piece she made about her experiences living with Parkinson's.
So when she heard about the Parkinson's quilt Project, which will bring quilts together from all over the world, she was eager to get involved.
She not only sewed a panel for the quilt, she also serves on the project's advisory committee. In this capacity, she performs outreach to other people affected by Parkinson's, letting them know they too can play a part.
Pryor's own quilt panel, entitled "Thanks" is a tribute to the various Parkinson's organizations, including PDF, that provide important services and information for those with PD.
Her Panel, which she sewed in one week, features logos of each charity, which Pryor calls "lifelines" for those with Parkinson's
.
Pryor said of her efforts, "I am grateful that PDF was able to provide me with an opportunity and that they are bringing together quilters who have the same goal in mind: to let others know about Parkinson's.
"I also hope that my contribution to the quilt project lets others see that they too can help make a difference by becoming involved, whether by quilting or any other means."
Robin Elliott, executive director of the Parkinson Disease Foundation, the organization that is leading the quilt project, said,"The true power of the Parkinson's Quilt Project comes from the 600 individuals such as Pryor,who actually create the pieces that we assemble. When the quilt is displayed for the first time at the World Parkinson's Congress in Glasglow, Scotland in September, it will radiate her contributions and those of hundreds of others around the world who, like her, are touched by Parkinson's.
"It will also remind the world that we need increased awareness and funds to find a cure for Parkinson's. We applauded Ms. Pryor's efforts to help make all of this happen." Those interested in learning more or requesting an image of Ms. Pryor's panel can do so by calling PDF at (800) 457-6676, emailing info@pdf.org or visiting http://supportpdf.org/quilt.
About Parkinson's Disease
Parkinson's disease is a progressive neurological disorder that effects nearly1 million people in the US. Although promising research is being conducted, there is currently no cure for Parkinson's
About the Parkinson's Disease Foundation
The Parkinson's Disease Foundation(PDF) is a leading national presence in Parkinson's Disease research, education and public advocacy. It is working for the nearly 1 million people in the U.S. who live with Parkinson's by funding promising scientific research to find the causes of and a cure for Parkinson's while supporting people with Parkinson's and their families and caregivers through educational programs and support services.
Since its founding in 1957, PDF has funded more than $85 million worth of scientific research in Parkinson's disease, supporting the work of leading scientists throughout the world.
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