Friday, August 15, 2008

Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings

Aren't you amazed sometimes at the amount of inevitable things that happen in the span of a day? Is it possible that you just blunder on through a day and never notice the hand that is slowly but surely being dealt you? I have heard that there are certain things that happen no matter what we do to prevent them. Death and taxes are right up there for most people, but what about the little things? What about the person you meet that instantly pulls you out of your safe comfort zone and entwines you with friendship, or the words you read on the internet that just seem to haunt you to answer. How about the gestures of kindness that appear from nowhere on a down day to bring sunshine to all of your little corners of darkness. Are these things inevitable in a life time or am I just blessed.

Months ago a little lady from California posted on Quietly she entered the forum but always with a smile though she was obviously in huge amounts of pain. If you were down she was there with the most beautiful graphics that forced those hidden emotions to the surface and you would either smile or cry but instantly feel better and for just that instant forget your own pain. I'd sit at night and look at her picture as I answered her post and wondered how did she got to here at such a young age. Little did she know that in her list of inevitable things to happen in her life time was trauma, almost losing her husband of twenty years in a fall off a two story building and finding out ten years later she had Parkinson's Disease.

As the months moved on, our friendship grew and grew. We noticed that often our pains were similar and when she was having extreme spasms in her legs at 2 or 3 in the morning, she would take the phone down stairs and pace in the bathroom while she talked to me until morning rolled around and the pain had left and in it's spot was left exhaustion. We discovered heat and the ability we had to send the pain somewhere else just long enough to curl up like a baby with our snuggle blankets and pillows and fall asleep thousands of miles apart.

Soon the sweetest guy would come down the steps and ask Karen, "Who's that." and she'd say,"Pokie" and he would call out "Hi, Pokie" as he went out the door. This guy is Al her soulmate of thirty years disabled from his fall but loving Karen more everyday.

Yesterday Karen found out she has MSA not Parkinson's and once again the inevitable was changed. All around her wept with the diagnoses as did I. At 50 to be handed this deck and ask to play it out....I spent the night spreading the word on a personal mission to defeat the pain I felt but as morning came the phone rang and who was there trying to cheer me up but Karen......"Pokie it'll be ok.".......

Karen it WILL be ok . We will fight this together. We will find someone to help us. We will because we pokie


Anonymous said...

Pokie, I am, like you, very concerned about Karen. It is such a shock for her to find this news out. Also, I know as a close friend, this impacts you a great deal. You both are in my thoughts. Keep up the good work on the blogs. Your friend, Dan

pokie too said...

Dan, I thank you so very much for being a true friend through this for both of us. Today a little over a week later she is the shining star she was before with one change she is standing solid to fight anything that comes her pokie

Anonymous said...

Oh Miss Pokie...what can I say it has been nearly a month since my PD was changed to MSA and only just now I sit here catching up on blogs of those I love. You are such a special lady, please know that I am so very blessed to have you in my life...I am so very lucky that you are on my journey with me and I with you on yours...My sweet friend I will always be here for you...I am not going anywhere for a long, long time!
Love always, b'nana

Today With PokieToo and Parkinson's and Acute RA Disease