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Who says you can't have fun and have Parkinson's? No not me. Early today my son picked me up with my youngest grandson Ayden. The three of us plus grandma headed off to Bucheitt's, something like a Rural King in our area. Our mission was Matthew (my son) a birthday present and me a wagon.....not just any wagon. I wanted a John Deere deluxe, with tall wooden sides and special tires for ruff terrane..This would be the top of the top of wagons and I knew I would know it when I saw it. Ayden and I set off me in my power chair and he in his three wheel stroller. Every so often we would stop for kisses and a little hand holding. Then we rounded the corner to end our jouney. I watched his face and knew I was in the right place. His eyes were huge when the clerk got the ladder out and pulled it down. He would look at me and look at the wagon. My point rating as a grandma went off the charts. He has this thing he does when he is really happy. He has done it every since he was born. I call it "singing with the angels" and he started in singing and his thought was WOW....Now you might wonder why me at 62 needed a wagon and that fancy a wagon, The reason is because I can put my groceries in and get them to the front door after shopping. When we got home, his dad loaded him in and my purchases and off we went. The special tires let me roll right over the drive way and up to the porch. He and I singing the whole way. Who would have thought life could be so grand with Parkinson, Epilepcy and Arthritis....it is and I can only say thanks....love Pokie
Showing posts with label 2009 PARKINSON'S UNITY QUIT. Show all posts
Showing posts with label 2009 PARKINSON'S UNITY QUIT. Show all posts
Tuesday, November 3, 2009
Sunday, November 1, 2009
Yes I Can.....
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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
For over three years now, my mind has allowed me to rest for two or three hours and then either dream or force me out of a dream onto the computer and typing. To some this would seem torture but to me it is a passion pouring forth. My thoughts seem never ending and constant about Parkinson's Disease and how it effects my daily life. No matter how I feel, be it weak or in pain, my first thought is to get to the computer and type in some form or fashion. My whole life has always centered around my family. My three kids and later five grandkids have always been all I seemed to be able to live for and then came this disease. Oddly enough I seem to be granted these short periods where my family is allowed to make me laugh and then back to here to type all I feel. Yesterday my youngest grandchild graced me with a visit. I can no longer just take off and visit him at my every wim. My mother at 84 and can not be left alone and now my Epilepcy prevents my driving long distances. I did not realize how much I missed the laughing. That little face brought a whole different world to me. He turned and looked me straight in the eye and for a moment. I did not have a care in the world.. Parkinson's was not a part of me. It was only me and Ayden....laughing.
Here he was at eighteen months in all his Halloween glory and he had total command of me and every thing around me. Those beautiful blue eyes surrounded by that most gorgeous white blond hair knew me only as "Nee Nay" and my home was a treasure trove of buttons to push with a kitten to follow along behind My eyes never left his the whole time he was here. I litterly was in a trance. He sat on my lap and I can only say I visited heaven. I went to bed with a smile on my face and still have that smile on my face. He gave me the strenghth to fight through a hug. When my resorces were running so low God sent me prescious Andyen to shore me up for another fight. Wow.... what a gift! I see now it was their way of saying, " Can you remember this hug and pass it on?" "Can you hug someone who really needs it tomorrow?" "Can you make them smile?""Can you write one more word to let them know they are important?"..... YES I CAN.....love Pokie
Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
For over three years now, my mind has allowed me to rest for two or three hours and then either dream or force me out of a dream onto the computer and typing. To some this would seem torture but to me it is a passion pouring forth. My thoughts seem never ending and constant about Parkinson's Disease and how it effects my daily life. No matter how I feel, be it weak or in pain, my first thought is to get to the computer and type in some form or fashion. My whole life has always centered around my family. My three kids and later five grandkids have always been all I seemed to be able to live for and then came this disease. Oddly enough I seem to be granted these short periods where my family is allowed to make me laugh and then back to here to type all I feel. Yesterday my youngest grandchild graced me with a visit. I can no longer just take off and visit him at my every wim. My mother at 84 and can not be left alone and now my Epilepcy prevents my driving long distances. I did not realize how much I missed the laughing. That little face brought a whole different world to me. He turned and looked me straight in the eye and for a moment. I did not have a care in the world.. Parkinson's was not a part of me. It was only me and Ayden....laughing.
Here he was at eighteen months in all his Halloween glory and he had total command of me and every thing around me. Those beautiful blue eyes surrounded by that most gorgeous white blond hair knew me only as "Nee Nay" and my home was a treasure trove of buttons to push with a kitten to follow along behind My eyes never left his the whole time he was here. I litterly was in a trance. He sat on my lap and I can only say I visited heaven. I went to bed with a smile on my face and still have that smile on my face. He gave me the strenghth to fight through a hug. When my resorces were running so low God sent me prescious Andyen to shore me up for another fight. Wow.... what a gift! I see now it was their way of saying, " Can you remember this hug and pass it on?" "Can you hug someone who really needs it tomorrow?" "Can you make them smile?""Can you write one more word to let them know they are important?"..... YES I CAN.....love Pokie
Friday, October 30, 2009
The Lady Hits the Road
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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
Almost a year ago today I posted on http://Patientslikeme.com the question,"Would you guys like to make a quilt?" and the answers started rolling in. I bought material and cut three 26 inch squares for each person who answered. This was a sizable leap of faith for each person answering because they had to give me their address and sometimes their phone numbers. As the year moved on the trust and feeling of community progressed on to regular correspondence between us. She was ready in time for the walk only due to the quilting done and donated by Barb Marfell, a cancer survivor in a nearby town. As our friendship grew, I found out her brother in law and father in law had had Parkinson's and are no longer with us. With this I began to feel the personality build in the quilt.
I ask each person to write a small story about what "She" meant to them when hey were done and in April off she and I went to Central Park and our PLM team of 37 walkers. We raised almost $20,000.00 for Parkinson's Research and most of us had never met each other. Our plan was to aution her off later for research. Little did I know how attached we would become to her and what a sick road I wass ready to set out on.
I came home on a Sunday and the following Saturday had a symposium for the town and since then have gotten sicker and sicker until the 7th when I finally had a seizure and was diagnosed with not only Parkinson's but Arthritis and Epilepsy.
Today I sent her on her way. Unprotected. I would have never dreamed I would become so attached to anything made by strangers. But, as she travels around they will feel her spirit also and contribute to an ever widening cause and her job will be done....love Pokie
Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
Almost a year ago today I posted on http://Patientslikeme.com the question,"Would you guys like to make a quilt?" and the answers started rolling in. I bought material and cut three 26 inch squares for each person who answered. This was a sizable leap of faith for each person answering because they had to give me their address and sometimes their phone numbers. As the year moved on the trust and feeling of community progressed on to regular correspondence between us. She was ready in time for the walk only due to the quilting done and donated by Barb Marfell, a cancer survivor in a nearby town. As our friendship grew, I found out her brother in law and father in law had had Parkinson's and are no longer with us. With this I began to feel the personality build in the quilt.
I ask each person to write a small story about what "She" meant to them when hey were done and in April off she and I went to Central Park and our PLM team of 37 walkers. We raised almost $20,000.00 for Parkinson's Research and most of us had never met each other. Our plan was to aution her off later for research. Little did I know how attached we would become to her and what a sick road I wass ready to set out on.
I came home on a Sunday and the following Saturday had a symposium for the town and since then have gotten sicker and sicker until the 7th when I finally had a seizure and was diagnosed with not only Parkinson's but Arthritis and Epilepsy.
Today I sent her on her way. Unprotected. I would have never dreamed I would become so attached to anything made by strangers. But, as she travels around they will feel her spirit also and contribute to an ever widening cause and her job will be done....love Pokie
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