SAVE OUR GRANDCHILDREN

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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings

 I started the New Year off right today as I visited a new Neurologist in a nearby town. After almost four years with my past one, I had more than one regret today as I entered his new office.  With the new diagnosed Epilepsy, I could no longer travel to St.Louis and back in a days time from my part of the country. especially with me driving. He seems to be an excellent doctor and even let me know he was on the internet. I exchanged business cards with him and we were off.  He was telling me I had too many things  wrong with me and we were having to decide what to treat. There were also things he didn't treat and didn't want to waste his time on like, diabetic problems and arthritis.  So seizures and Parkinson's were next.  Of these two he said not everything could be grouped under Parkinson's and he had no idea why I had a seizure...he would treat it and hope it did not return ..ever. Now with the Parkinson's New meds were in order and quantities remained reduced. This will be the year I get this pill thing in order.  Thirty two pills a day is ridiculous for anyone, whether they have my diseases or not. If I can some how replace most twos with ones I will be so happy.

He gave me a new guide book featuring Holly Robinson Peete from the Hands Book.  Excellently put together with a tape included.  It covers the medications for Parkinson's Disease, causes and effects.  It is published by Teva and once again I think excellent short reading.

I think this Neuro is one of the best in the area and will do the best he can.  He did say he would not give me false hope.  It is aN incurable disease at the present and has been for a long time.  So the best I can do is fight with all I have an do it on as little sinemet as I can because I am looking at a long fight.  his is not the first time I have been referred to as a bAby with this disease. I can only pray for those who are getting diagnosed with this in their twenties. Those of us who are able to talk must fight this for those who can no longer talk.  Those who can walk must walk to places those who cannot will not be able to go.  And those of us who have a few extra dollars must spend them for this cause.  SAVE OUR GRANDCHILDREN PLEASE.....love pokie

Merry Christmas to Me

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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings

I very seldom say what I am into behind the scenes, but today I cannot help but get on my soapbox and just yell at the top of my lungs....WOW  MERRY CHRISTMAS TO ME.......Six am. on Christmas Eve and I open my computer to get the current news and find out I am listed in the new Proud Hands Book by Teva....This is the very first book I collected at my first Unity Walk in 2008.  Holly Berry signed my first book and now I will be in the next one. I am literally brought to my knees by this.  I am an ex goat farmer from the Midwest who never wrote anything before 2008.  I have spent my life raising a family of three as a single mother.  Those three produced six grandchildren which turned out to be the joy of my life. Along came Parkinson's in 2005. shortly after I had retired. to take care of my mom after my dad passed away. For some reason I never fell into depression, as most do. I can only attribute this to the fact that almost immediately God put me in touch with http://www.Patientslikeme.com.  Such a small little site for Parkinson's patients at the time and now look at it.  They nurtured me along, a small step at a time.  The amazement is, I never touched a computer before finding PLM.  As a matter of fact I was looking for my email when I found Patientslikeme.com and some how (God) got in there and guided me along.  I didn't  even know what a username was.  I can only say this  to all there and especially Jamie Heywood, one of the owners, for putting up wlth me in the past years and providing me a home away from home. Well now on to the next surprise, as if this was not enough.

I had been ask to compete for HealthBlogger of the Year on http://www.Wellsphere.com some time ago and this morning I found out I came in thirty fourth of the top one hundred this morning. I can only say thank you so much for all that read my blogs and voted for me.  I can only say this and stop to cry.  Thank you friends.  Thank you family.  Thank you Parkinson's and most of all THANK YOU JESUS. on this the eve of your birthday, for bringing your celebration to my house in such a way.  I am forever changed   Merry Christmas and Happy Birthday   Pokie