I have had an amazing journey in my mind today. I really didn't think yesterday could be beaten but here we go.....We have had two days of beautiful sunshine in Illinois and that has always made me feel like God's pay back for my patience. Yesterday I received an email from a gentleman representing THERACYCLE....Yes, "THE THERACYCLE" . They have received recognition from NIH and they wanted my feedback on a cheaper model for PD patients. The funny part is, I have been following them for over a year after seeing a PBS special on quadriplegics (Francesco Clark) who were using the Gygerrmed from Germany with great success. Neither machine could I afford. , but the theory was good...I will add more later, but check this out....http://blog.theracycle.com/?p=23 love ya Pokie
This is my viewpoint on fighting not only Parkinson's Disease but Acute Arthritis and Epilepsy with My Lord on one side and Patientslikeme.com on the other....with a sense of fun and friendship all around..... Sincerely, Pokie
Showing posts with label David Zid. Show all posts
Showing posts with label David Zid. Show all posts
Thursday, December 1, 2011
Wednesday, May 13, 2009
The Conference Was a Success
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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
Where I able to give a gift to every Parkinson patient, I would give a visit from these four people, David Zid, Jackie Russell, Debbie Guyer, and Dr.Max Benzaquen. these four people made our conference and then some. David and Jackie Pulled the group together in a circle and started very simple exercises aimed at the novice. As simple a movement as putting you hands together in a praying position in front of you and pushing can help someone with Parkinson's......or propping your feet up on a hassock for fifteen minutes. Tiny little things can make all the difference in our day. Have you ever considered which leg you step into the bath tub with? Try standing on your Parkinson leg(the side the symptoms present). It usually is pretty good at freezing and you can lift the other leg farther and higher. Hold on to your security bars and try it. It works for me. Baths or now impossible for me and oh, how I miss this....With two replaced knees and shrinking vertebra it is just out of the question...Next, I guess is a sit down tub.
One of the attendees has had Parkinson's for thirty years and spends most his time in a wheelchair. He has always been my idol for his sheer style in which he handles the disease. In my book, he and his wife are a class act in all ways. With David in front and Jackie behind, they had Bob out of the wheelchair and standing and smiling. David and Jackie just radiate love and kindness on all sides....I am so blessed to count them as my friends.
Then come the St. Louis crowd. Dr Max could have been very standoffish to the audience, but instead went person to person talking to them about Parkinson's and their treatments and doctors.....At one point he touched Bob's chest and said"Ah, very good!" ". You had a very good Doctor" He has three hundred patients in Chesterfield, Missouri.
Debbie was an integral part to the whole program. The information she provided before hand was worth everything to me. and her program on LSVT was so warm and aided by an actually participant in the audience. The whole day was friendly and comfortable for all and the actual community united with the Parkinson's Community for advancement of both. Thank-you all. The word is out that there will be a second annual except not wait a year and go for the fall....Love Pokie
Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
Where I able to give a gift to every Parkinson patient, I would give a visit from these four people, David Zid, Jackie Russell, Debbie Guyer, and Dr.Max Benzaquen. these four people made our conference and then some. David and Jackie Pulled the group together in a circle and started very simple exercises aimed at the novice. As simple a movement as putting you hands together in a praying position in front of you and pushing can help someone with Parkinson's......or propping your feet up on a hassock for fifteen minutes. Tiny little things can make all the difference in our day. Have you ever considered which leg you step into the bath tub with? Try standing on your Parkinson leg(the side the symptoms present). It usually is pretty good at freezing and you can lift the other leg farther and higher. Hold on to your security bars and try it. It works for me. Baths or now impossible for me and oh, how I miss this....With two replaced knees and shrinking vertebra it is just out of the question...Next, I guess is a sit down tub.
One of the attendees has had Parkinson's for thirty years and spends most his time in a wheelchair. He has always been my idol for his sheer style in which he handles the disease. In my book, he and his wife are a class act in all ways. With David in front and Jackie behind, they had Bob out of the wheelchair and standing and smiling. David and Jackie just radiate love and kindness on all sides....I am so blessed to count them as my friends.
Then come the St. Louis crowd. Dr Max could have been very standoffish to the audience, but instead went person to person talking to them about Parkinson's and their treatments and doctors.....At one point he touched Bob's chest and said"Ah, very good!" ". You had a very good Doctor" He has three hundred patients in Chesterfield, Missouri.
Debbie was an integral part to the whole program. The information she provided before hand was worth everything to me. and her program on LSVT was so warm and aided by an actually participant in the audience. The whole day was friendly and comfortable for all and the actual community united with the Parkinson's Community for advancement of both. Thank-you all. The word is out that there will be a second annual except not wait a year and go for the fall....Love Pokie
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Sunday, November 16, 2008
Traveling for a Cure
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Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
Several things have happened to me in the past month, things that never would have happened before being diagnosed with Parkinson's Disease. I launched a support group at the Fayette County hospital, in Vandalia, Illinois. It's not just for Parkinson's Disease but caregivers and anyone that would just like to talk and get information about neurological disorders. The first meeting was a month ago tomorrow and so I will venture back with my mind a buzz with places I have been and things I have learned.
One of the great people I met was David Zid from Columbus, Ohio. Oh , now if you ever get the chance to meet this man please go. David graduated from the University of Ohio and is a personal trainer and president of Columbus Health Works and co author of Delay the Disease. He was soon drawn into Parkinson's Disease through a newly diagnosed friend and from there he saves the world. If David didn't do anything but smile he would win the world over but he has devised a very simple no stress exercise program that you can do sitting down or with a chair. His program is Exercise and Parkinson's Disease and his Book is Delay the Disease, and it works on the idea that if muscles are not moved they will freeze and not be able to move. DAVID THINKS BIG. Big movements that start in small ways and over time the movement comes back. When you see his presentation he comes down off the stage and goes through the crowd and you can tell how much he loves what he does. He's not above lying on the floor or giving you a hug or just stopping the show and talking to you. He really cares!
I had met his dad in Atlanta, Georgia at the Young Onset Parkinson's Conference in August and was so surprised to see him again at Indianapolis, Indiana and realized that he was David's father. I was there for the Parkinson's Awareness Assn. of Central Indiana, Inc. attending their symposium and David's dad recognized me first and then it was on....What a wonderful family and the things they are doing for Parkinson's Disease are astronomical...
The next person I met that day was a tiny little gal making a difference....Kristy Follmar Executive Director of Rock Steady Boxing and a certified personal trainer. she began her career as an Indiana Golden gloves Women's Champ(1999, 2000) and first ever Women's Indiana State Champion and NABC Featherweight and Super Featherwight Champion (2002,2003) With this list of credentials, she is the sweetest, most down to earth little gal I have ever met. She takes people in their sixties, seventies and eighties and teaches them to box and love it. She brought with her two examples, a woman in her sixties and a gentleman in his late seventies and you should have seen them hit her glove as she yelled right, left, left right. They were the picture of self confidence and balance. These are two very important things to people with Parkinson's and two things that we usually have very little of.
As luck would have it, when I got to the Davis Phinney Victory Summit in Denver, Colorado, October 4th. Kristy and her personal trainer Bob Schaefer and I had a chance to really talk and exchange ideas on a cure and talk about some people with great idea within the Parkinson's Network, one being my friend Tom and the Loaner Closet for Needed Equipment.
As you can see I have found my passion through being faced with a debilitating disease. My daily trials are counterbalanced with possibilities for a cure and trough taking that passion to the street, awareness is raised. Parkinson's is no longer someone in the corner of the nursing home in a wheel chair sleeping. We are many strong fighting a disease that can strike you down in your teens and twenties as well as older. Will it take babies being diagnosed with this disease before we can find a cure?
Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings
Several things have happened to me in the past month, things that never would have happened before being diagnosed with Parkinson's Disease. I launched a support group at the Fayette County hospital, in Vandalia, Illinois. It's not just for Parkinson's Disease but caregivers and anyone that would just like to talk and get information about neurological disorders. The first meeting was a month ago tomorrow and so I will venture back with my mind a buzz with places I have been and things I have learned.
One of the great people I met was David Zid from Columbus, Ohio. Oh , now if you ever get the chance to meet this man please go. David graduated from the University of Ohio and is a personal trainer and president of Columbus Health Works and co author of Delay the Disease. He was soon drawn into Parkinson's Disease through a newly diagnosed friend and from there he saves the world. If David didn't do anything but smile he would win the world over but he has devised a very simple no stress exercise program that you can do sitting down or with a chair. His program is Exercise and Parkinson's Disease and his Book is Delay the Disease, and it works on the idea that if muscles are not moved they will freeze and not be able to move. DAVID THINKS BIG. Big movements that start in small ways and over time the movement comes back. When you see his presentation he comes down off the stage and goes through the crowd and you can tell how much he loves what he does. He's not above lying on the floor or giving you a hug or just stopping the show and talking to you. He really cares!
I had met his dad in Atlanta, Georgia at the Young Onset Parkinson's Conference in August and was so surprised to see him again at Indianapolis, Indiana and realized that he was David's father. I was there for the Parkinson's Awareness Assn. of Central Indiana, Inc. attending their symposium and David's dad recognized me first and then it was on....What a wonderful family and the things they are doing for Parkinson's Disease are astronomical...
The next person I met that day was a tiny little gal making a difference....Kristy Follmar Executive Director of Rock Steady Boxing and a certified personal trainer. she began her career as an Indiana Golden gloves Women's Champ(1999, 2000) and first ever Women's Indiana State Champion and NABC Featherweight and Super Featherwight Champion (2002,2003) With this list of credentials, she is the sweetest, most down to earth little gal I have ever met. She takes people in their sixties, seventies and eighties and teaches them to box and love it. She brought with her two examples, a woman in her sixties and a gentleman in his late seventies and you should have seen them hit her glove as she yelled right, left, left right. They were the picture of self confidence and balance. These are two very important things to people with Parkinson's and two things that we usually have very little of.
As luck would have it, when I got to the Davis Phinney Victory Summit in Denver, Colorado, October 4th. Kristy and her personal trainer Bob Schaefer and I had a chance to really talk and exchange ideas on a cure and talk about some people with great idea within the Parkinson's Network, one being my friend Tom and the Loaner Closet for Needed Equipment.
As you can see I have found my passion through being faced with a debilitating disease. My daily trials are counterbalanced with possibilities for a cure and trough taking that passion to the street, awareness is raised. Parkinson's is no longer someone in the corner of the nursing home in a wheel chair sleeping. We are many strong fighting a disease that can strike you down in your teens and twenties as well as older. Will it take babies being diagnosed with this disease before we can find a cure?
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